Detalles de la búsqueda
1.
Looking ahead: ethical and social challenges of somatic gene therapy for sickle cell disease in Africa.
Gene Ther
; 2023 Nov 27.
Artículo
en Inglés
| MEDLINE | ID: mdl-38012299
2.
Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals.
J Pediatr Hematol Oncol
; 44(7): e999-e1005, 2022 10 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-35700397
3.
An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.
Qual Life Res
; 31(9): 2681-2694, 2022 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-35445915
4.
Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease.
Pediatr Blood Cancer
; 67(5): e28152, 2020 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-32147964
5.
Lessons Learned from Building a Pediatric-to-Adult Sickle Cell Transition Program.
South Med J
; 112(3): 190-197, 2019 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-30830235
6.
Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana.
J Genet Couns
; 2018 Sep 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-30171429
7.
Emergency department utilization by Californians with sickle cell disease, 2005-2014.
Pediatr Blood Cancer
; 64(6)2017 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-28000344
8.
Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Meâ .
Health Qual Life Outcomes
; 15(1): 117, 2017 Jun 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-28577358
9.
Long-Term Pulmonary Function and Quality of Life in Children After Acute Respiratory Distress Syndrome: A Feasibility Investigation.
Pediatr Crit Care Med
; 18(1): e48-e55, 2017 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-28060170
10.
Using formative research to develop a counselor training program for newborn screening in Ghana.
J Genet Couns
; 24(2): 267-77, 2015 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-25193810
11.
Teaching About Genetics and Sickle Cell Disease In Fifth Grade.
J Natl Med Assoc
; 107(1): 4-10, 2015 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-27282522
12.
Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks.
Health Qual Life Outcomes
; 12: 125, 2014 Aug 22.
Artículo
en Inglés
| MEDLINE | ID: mdl-25146160
13.
A Quality Improvement Initiative to Improve Emergency Department Care for Pediatric Patients with Sickle Cell Disease.
J Clin Outcomes Manag
; 21(2): 62-70, 2014 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-26412961
14.
Perceptions and preferences for genetic testing for sickle cell disease or trait: a qualitative study in Cameroon, Ghana and Tanzania.
Eur J Hum Genet
; 2024 Feb 19.
Artículo
en Inglés
| MEDLINE | ID: mdl-38374470
15.
The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.
Am J Hematol
; 93(12): E391-E395, 2018 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-30203558
16.
A biopsychosocial-spiritual model of chronic pain in adults with sickle cell disease.
Pain Manag Nurs
; 14(4): 287-301, 2013 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-24315252
17.
Quality of Life in Sickle Cell Disease: What Matters.
Hematol Oncol Clin North Am
; 36(6): 1137-1149, 2022 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-36400535
18.
Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative.
Front Genet
; 13: 921432, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-36092883
19.
Autonomic nervous system reactivity: children with and without sickle cell disease.
Nurs Res
; 60(3): 197-207, 2011.
Artículo
en Inglés
| MEDLINE | ID: mdl-21532352
20.
Improving Preventive Care for Children With Sickle Cell Anemia: A Quality Improvement Initiative.
Pediatr Qual Saf
; 6(1): e379, 2021.
Artículo
en Inglés
| MEDLINE | ID: mdl-33409431